Rebecca Alexander: Senses Lost and Found

In Rebecca Alexander’s memoir Not Fade Away: A Memoir of Senses Lost and Found, she details her experience of learning as a teenager that she has a rare genetic disorder that will eventually cause complete loss of hearing and sight. Alexander’s reaction to the devastating diagnosis of Usher Syndrome Type III was to spring into action, seeking multiple avenues of empowerment. Not Fade Away tells her extraordinary story, at times harrowing, but often funny and always exceptionally inspiring.